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National Parkinson Foundation

NPF

National Parkinson Foundation

This week we sat down with the President and CEO of National Parkinson Foundation, Joyce Oberdorf and Larry Kahn, CEO/Founder of PD Gladiators, a man who develoed early-onset Parkinson disease.  Approximately 1 Million people are living with Parkinson disease in the US today.  The National Parkinson Foundation’s website describes Parkinson disease this way, “Parkinson’s disease (PD) is a chronic and progressive movement disorder, meaning that symptoms continue and worsen over time. Nearly one million people in the US are living with Parkinson’s disease. The cause is unknown, and although there is presently no cure, there are treatment options such as medication and surgery to manage its symptoms.

Parkinson’s involves the malfunction and death of vital nerve cells in the brain, called neurons. Parkinson’s primarily affects neurons in the an area of the brain called the substantia nigra. Some of these dying neurons produce dopamine, a chemical that sends messages to the part of the brain that controls movement and coordination. As PD progresses, the amount of dopamine produced in the brain decreases, leaving a person unable to control movement normally.”

Joyce came by to talk about research the National Parkinson Foundation is supporting that is aimed at improving the quality of life of patients living with the disease today.  They seek to share best practices that show promise among providers, with regard to the pace of progression and/or severity of symptoms so these persons can enjoy life more fully, longer.

She brought Larry Kahn, founder of PD Gladiators, a boxing gym exclusively for PD patients that was launched after Larry learned about and experienced the benefits of vigorous exercise on his symptoms.  He shared his poignant story about learning he has PD (after having had it missed over a year earlier by his initial doctor), how he and his wife approached the diagnosis, and how/why he started PD Gladiators.  Larry and Joyce talked about research that has shown the benefits of vigorous exercise on cognitive function among ALL of us, including PD patients.  They endeavor to share that information widely so that more PD patients can receive the reparative benefits themselves.

We talked about the resources needed by the National Parkinson Foundation and Larry that will enable them to further advance awareness and quality of life among Parkinson disease patients.  We hope you share this podcast, as the information they shared will very likely help someone you care about who’s suffering with Parkinson today.

Special Guests:

Joyce Oberdorf, President and CEO, National Parkinson Foundation  linkedin_small1  facebook_logo_small3  twitter_logo_small  feed logo  youtube logo

Joyce

Larry Kahn, Founder, CEO, PD Gladiators  linkedin_small1  twitter_logo_small  facebook_logo_small3

larry

 

GeorgiaSHAPE

GeorgiaSHAPE

GeorgiaSHAPE

The Centers for Disease Control published these striking statistics about childhood obesity in the US:

Innovations in Heart Health

HCS 5

Innovations in Heart Health

This week, for Week 5, we focused on innovations in heart health.  Emory physician, researcher, and professor, Dr. Omar Lattouf came by to share about research he’s been working on developing  new techniques for some challenging heart disorders, and an exciting project he’s working on that is aimed at reducing the number of patients who die from cardiometabolic syndrome.  Dr. Lattouf’s work on how conduction problems are treated by insertion of pace makers using a minimally-invasive approach has helped improved outcomes for countless critically-ill patients.  Dr. Lattouf talked about their soon-to-launch study on an application designed to help patients with, or at risk for, cardiometabolic syndrome.  The application will empower patients to track key vital signs and other health information and make decisions that will improve key factors such as cholesterol, blood pressure, weight, and more.  As Dr. Lattouf shared his personal story about his own family’s experience with heart disease, his passion for helping fight heart disease, which in large part is preventable, was obvious.

Robert Arkin, CEO and Founder of Sensiotec joined us to talk about the way they are using technology and health data to provide clinicians the ability to monitor key vital signs and patient movement patterns in a hands-off way.  He talked about how he has long held a desire to help his community on a large scale that he knew that being involved in developing healthcare innovations provides the best way to do that.  Robert described how their device uses a special radar technology that is able to measure body movements and even internal organ function, providing real-time vital signs and patient movement patterns.  Their technology’s algorithms enable providers to get a degree of predictive information that could potentially help avoid patient falls/injury, or even detect troublesome trends in vital signs that could enable proactive care decisions that could prevent a serious cardiovascular event.

These two health innovators discussed the additional resources they need that could facilitate the acceleration of their respective work with regard to making their solutions available to patients on a larger scale.   We are pleased to support their work by helping them tell their story.

Special Guests:

Dr. Omar Lattouf, MD, of Emory University School of Medicine  linkedin_small1  twitter_logo_small  facebook_logo_small3  youtube logo

omar_lattouf

  • Doctor of Medicine, Emory University School of Medicine
  • Board Certified, American Board of Surgery, American Board of Thoracic Surgery
  • Performed Georgia’s first domino heart transplant
  • He and a colleague implanted the state’s first Abiomed biventricular assist system to support the failing heart of a patient suffering from post-cardiotomy shock

Robert Arkin, CEO of Sensiotec  linkedin_small1  twitter_logo_small  facebook_logo_small3

arkin

  • Juris Doctor, University of Virginia School of Law
  • Recipient, 2012 Atlanta Business Chronicle Healthcare Heroes Award for Healthcare Innovation
  • Fomer CEO, Chairman, Modavox, Inc.
  • Former Member, Board of Directors, Frontline Healthcare Workers Safety Foundation